Copa and Core Satellite Meetings on Lysosomal Disease

Council of Patient Advocates (COPA) Workshop

Council of Patient Advocates (COPA) Workshop: The Lysosomal Disease Network’s (LDN) Council of Patient Advocates (COPA) will meet on Monday, February 4, 2019 from 9:00 AM to 12:00 PM for a morning workshop.

More information will be posted here as it becomes available, and will also be available on the Lyosomal Disease Network website.

Council of Research Experts (CORE)

The Council of Research Experts (CORE) – also known as the NIH-funded Investigators, or Lysosomal Disease Network Investigators – will meet on Friday, February 8, 2019 from 8:00 AM to 12:00 PM. A light breakfast and beverages provided. Everyone involved with the Lysosomal Disease Network’s research is required to attend. NIH administrative scientists, COPA members, and industry representatives are encouraged to attend. Complete information on the 2019 CORE meeting requirements will be available from the Lysosomal Disease Network

The Lysosomal Disease Network (U54NS065768) is a part of the National Institutes of Health (NIH) Rare Diseases Clinical Research Network (RDCRN), supported through collaboration between the NIH Office of Rare Diseases Research (ORDR) at the National Center for Advancing Translational Science (NCATS), the National Institute of Neurological Disorders and Stroke (NINDS) and National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK). The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health.