Copa and Core Satellite Meetings on Lysosomal Disease

Lysosomal Disease Network (LDN) COPA as WORLDFair

WORLDFair – Council of Patient Advocates (COPA)™ Workshop: The Lysosomal Disease Network’s (LDN) annual meeting for patients and patient advocates will meet the day before WORLDSymposium 2019 convenes on Monday, February 4, 2019 from 8:30 AM to 12:00 PM. This meeting is open free-of-charge to all patients and advocacy members even if they are not attending WORLDSymposium.

This year, the LDN introduces the “WORLDFair on Tour” with the inaugural event for patients, patient advocates, and other interested parties.

Meeting Start Time: the start of the meeting has been moved to 8:30 AM instead of 9:00 AM

Breakfast will be served from 8:00 AM to 9:00 AM.

A detailed agenda and more information are available on the LDN website.

Council of Research Experts (CORE)

The Council of Research Experts (CORE) – also known as the NIH-funded Investigators, or Lysosomal Disease Network Investigators – will meet on Thursday, February 7, 2019 from 5:30 PM to 7:30 PM. Light hors d’oeuvres will be provided. Everyone involved with the Lysosomal Disease Network’s research is required to attend. NIH administrative scientists, COPA members, and industry representatives are encouraged to attend. Complete information on the 2019 CORE meeting requirements will be available from the Lysosomal Disease Network

The Lysosomal Disease Network (U54NS065768) is a part of the National Institutes of Health (NIH) Rare Diseases Clinical Research Network (RDCRN), supported through collaboration between the NIH Office of Rare Diseases Research (ORDR) at the National Center for Advancing Translational Science (NCATS), the National Institute of Neurological Disorders and Stroke (NINDS) and National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK). The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health.